Might not be a lot but I'm making the most

Well blog, seeing as I'm updating you less than a month since my last post, then you must know I come bearing news.

So I met with that plastic surgeon that my nurse navigator had heard of. That was one of the hardest days I had had in a long while on this journey. He took one brief glance at my chest and told me -- 

1.) I wouldn't be able to get tattooed there because the skin was far too thin.

and 2.) Simply having a smaller implant put in to replace my current one on the right side, was not going to be successful; therefore, it was not an option for me.

He went on to further deflate me by explaining my only option available would be either TRAM or latissimus dorsi flap surgery. Then, he explained that generally only plastic surgeons who do TRAM/lat flap surgeries on a regular basis are comfortable doing them. 

In other words, he was done dealing with me. I was too much of a hassle. If not, that's definitely the vibe I got off the experience. It was a $40 co-pay to be dismissed immediately. Frustrating as it was, it was eye opening.

I need a cosmetic surgeon who is going to be patient, kind and willing to help "fix" me. 

So begins another challenge. We are quite limited on the number of plastic surgeons covered by our insurance. There is one in particular, I have had recommended to me by multiple reliable sources that I'd really like to be able to see. So now Jason and I are working towards anything we can to try and make that happen. 

This doc I want, specializes in breast reconstruction. He's done a lot of the surgeries for women in the breast cancer support group I had been to before. I just feel God is pointing me towards seeing him. If that's true, I think this will all pan out the way we're hoping. Time shall tell. 

Even my general surgeon, Dr. Kushner, recommended this cosmetic surgeon to me. Speaking of Dr. Kushner! I saw him earlier this week about having my port removed FINALLY. He was concerned about the issue with my heart racing which I'll get back to, but I was able to schedule an appointment to have my port yanked.

I was given the choice to have it scheduled and done at the surgical center, or just done in the back room where his office is. Only difference is twilight sleep. I decided I'm okay not being put under for this. I still get local anesthetic, so it's not like I'll feel anything. I'll just look away when he's slicing and stuff. ;)

As for my heart, well, I did eventually get a phone call from my cardiologist's office. They said my blood work looked fine. No hyperthyroidism then or anemia. After being prompted by Dr. Kushner, I called and scheduled to get my echocardiogram. My cardiologist had another test he wanted me to get, so I scheduled that and a follow up as well. 

The other one is to monitor my natural heart rate for 3 days. So I have to wear a monitor and check in each day for that I guess? The fun never ends, you guys! Haha

Ah, I also finally made it in to see my gynecologist. I literally hadn't seen him since maybe a couple months after my original diagnosis. He was very relieved to see me alive and doing fine. I thanked him up and down for helping me move things along so quickly, since he was the one who confirmed further testing about the breast lump I had.

I should have seen him more recently, seeing as I'm more at risk for cervical/ovarian cancer as someone who has breast cancer. So I'm nervous about getting my pap results. Hopefully all is normal and well. I'm going back next week, to have a hormone-free IUD placed and he's going to do an ultrasound on my pelvic area.

As I said, the fun never ends! I still have more docs to visit after these ones too, but I don't want to think about that right now. Lol! But you know, I would take preventative maintenance appointments any day over a lot of other things.

Other than filling my weeks with as many doctor visits as I can manage, I've been working and napping and squeezing fun in here and there. 

Disneyland has been my life long happy-place/refuge, plus the hubby and I have a ton of sentimental  history as a couple attached to it as well. So we've had a chance to get back there a bit more recently. Not much more in life makes me happier than being there, nonetheless being there with him. :)

We can't afford to take a real vacation, so it's our next best thing. And I am blessed and grateful for it. <3

With the mention of expenses, I must bring up something I debated with myself whether or not to post about here.

Now, I try not to speak of our financial issues. Not for pride's sake, but because I never wanted to worry anyone. 

Before I go on, it should be said that we have received generosity and kindness from family, more than I ever feel we ever could have deserved, earlier on during this ordeal. That help was what kept us afloat. 

We are just about 2 years out since my DX. Treatment didn't end for me until May 2013, and my last surgery was in August 2013. We are still trying to pay off my radiation therapy. On top of that, my so-called routine testing, has a much heftier co-pay. Our specialists co-pay went up last year as well. 

You think if you're blessed enough to beat cancer, it's all sunshine and cupcakes afterwards. And in many ways, it is! But the upkeep to make sure you remain cancer free... the lasting side effects... the medical bills that never cease... 

It takes its toll. At the suggestion of one my dear friends, Stacey (she was a fellow Disney bride too!), Jason made an account for us on a medical fundraising website called Give Forward. The money donated, which I am shocked and humbled we've received as much as we have so far, is going to help us pay off our medical bills. 

https://www.giveforward.com/fundraiser/6q24/anj-s-breast-cancer-treatment

Please, by no means feel obligated... prayers are deeply appreciated, but if you're interested in donating to help us out, click HERE. 

I feel so strange asking for donations. I don't see how or why little ol' me would be any worthier than anyone else out there, but I do feel so immensely touched by the outpouring of loved ones sharing and donating. Not to forget those beautiful strangers who have as well! <3 I see Christ is alive and well in each of these kind souls.

I hope we'll be able to return the favor one day. By our Lord's grace and mercy, I know we will. 

Even with all our stressful money dealings, I can't complain. It could be so much worse. I am ever grateful for each day. I, very heartbreakingly, was slapped with this reminder when my friend and personal cancer-warrior-hero, Stan, lost his battle a few weeks ago.

His optimism and love is resounding. He was and shall ever be an inspiration to myself and many others. I never saw him whining about anything, ever. The guy had plenty cause, out of nearly everyone I've known, to complain too. He never did. He fought nearly without end for 3 years.

I aspire to be that way... although I'm sorry, Stan. I don't think I'm as saintly as you were. :) 

Stan with his lovely wife, Fatima

Rest peacefully Stan. May God bless you, my friend, and may He bless your courageous wife, my friend Fatima as well. Let us all be appreciative for our blessings, great and small.

That covers everything new in my little world.  I hope to have more to share, and hopefully all positive news at that, in the coming weeks. 

Wishing you all a marvelous March! God bless!

"Let the peace of Christ rule in your hearts, since as members of one body you were called to peace. And be thankful."  Colossians 3:15

 

And she walks

Dear blog,

I am feeling deeply contrite for neglecting you. As is sadly common, in living normal life you take for granted the things which are normal. What I mean is that I've not posted because things have been going well! 

Not the worst of all excuses for my lack of posts, but still an excuse all the same. 

So with my apologies out of the way, I'd now like to update you on the newest!

Last I left you all, I was preparing to finish my radiation therapy. I did very happily complete it all back in May with no further hiccups.  To cross that final treatment finish line was beyond sweet. The commitment to go Monday through Friday was so mentally taxing. I almost didn't know how to react when I no longer had that obligation each day! 

I still tire very easily in comparison to my pre-diagnosis/treatment days. However, it's a vast improvement where I am energy wise versus my stamina level during radiation. 

Could I tell you that I'm running marathons and able to work 12-hour days and still go out afterwards? Oh hell naw! Haha. But I do feel a gradual return of energy. VERY gradual. Like, snail paced actually... but an improvement is still an improvement, right?!

After closing the radiotherapy chapter of my cancer saga, I had to wait for a couple of places on my right breast to fully heal up before seeing my cosmetic surgeon. One spot was particularly stubborn as it would JUST. NOT. HEAL. 

It was teeny-tiny too. One day there was a small thing poking from it that turned out to be another stitch my body decided it wasn't going to absorb. Once that sucker came out, it healed up in no time. I called and scheduled my first post rads saline expansion. 

Doc decided to fill only my left side as it was in need of it because it was deflated so much for better access during radiation. This last Thursday was to be my next fill. Went in with only the intention of getting closer to the size I want to be at. 

We went in not expecting much because at my last appointment, Dr. Mowlavi told me he'd like for me to wait 3 months more until we did my exchange swap surgery. 

Boy were WE surprised!

I did get a fill on my right finally, and quite well more to the size I will be, but it seems there may be a very slow leak in my left expander. I guess normally if there happens to be a leak, there would be a surgery to swap out that tissue expander. Seeing as I'm so close to being done, he favored moving up my swap surgery instead.

I bet you can guess who's going under the knife again in the next few weeks?! This Anj! 

Exceedingly unexpected but it is what it is and I trust God. I trust His goodness, His timing and His will. This is when it's supposed to occur, so it will. ^_^

I don't have my official date, but I will after tomorrow. I've had a follow up appointment scheduled to see Dr. Wagner for months so I'm seeing him after I get off work. Then I'm shooting straight over to pick up and sign papers for my forthcoming surgery from Dr. Mowlavi's office.

Haha, oh! And I'm seeing Dr. Wagner to report on how I'm doing being on Tamoxifen and finally the order for my CT scan. I'd been anxiously awaiting that. No matter how official papers are claiming there is no more cancer in you, my mind tells me I've been done with treatment for 3 months now. I finished chemotherapy nearly a year ago! In the back of each survivor's mind is that darkest of fears, "what if it came back?". 

Until I have more finalization that those terrible self sabotaging cells of mine are still 100% bye bye, I won't have complete peace of mind. The trouble is, I don't know if I'll be able to swing all these doctor appointments between everything depending on how quickly my surgery date shall arrive. 

Gotta jump through those hoops again. Clearance from the primary care physician who then asks you to have x, y and z exams done elsewhere. If I throw in a scan, finishing up possible dental work I've been procrastinating about, and fitting that all in between my work schedule... you might say I'm a little frazzled inside.

Here we go again, Lord! ;)

So what, pray tell, have I been doing in my blogging absence you ask? Well, working. And then working. And then recovering and napping and gaming and reading. And then working some more. :) Pretty standard, normal life living type of stuffs. Soaking up the pleasant little things and griping over insignificant ones like some sort of average joe. Essentially, relishing the normalcy I was robbed of by cancer for 15+ months. :P

My hair has grown. I had to get a trim a couple weeks ago. I don't know why hair inherently becomes a mullet as it grows out from nothingness, but it does. I had the hair stylist trim that party in the back to match the business in the front STAT. I hated my curls with a fearsome loathing at first, but I've grown fond of them with time. It makes me feel a little old timey. Like some sort of dame with lazy finger waves!

I have never received so many compliments on my hair as I have in the past 6 months or so. It might be slightly atrocious of me but I take great delight in people's responses when I explain why curls have not been the primary texture of my hair all my life. Some people handle it very gracefully. Others are speechless. Some are apathetic. It's intriguing to see which I get. 

Could I hold the truth from a stranger? Easily, but I feel like more people should be exposed to the reality of how commonplace cancer is. Almost everyone you know has had someone close to them touched by the disease in one way or another. Yet we still shy away from it as though it's something contagious. Like you could will it upon yourself or your loved one by saying its name three times simultaneously. Lol 

I was guilty of this thinking at one point too. I thought of the C as a disease that ends only in death. It could happen to the "other guy" and maybe even his family or friends, but it couldn't happen to MY family. Nope. Or MY friends. And least of all, to ME.

You would think that as a society, we would have grown to see that isn't true in the slightest. If this disease can happen to sweet babies and children, it can happen to anybody at any time for no tangible reason. Allow me to emphasize tangible. Surely there is plenty of reason for it, yet we may find none for it here.

Anyhow, my Susan G. Komen 3 Day fundraising is not going all that well. I suppose that I've not put enough into it either. I'm still going to give it my best to reach my minimum, but if either Jason or I can't reach that $2300, we can't walk. :( Simple as that. I'm so grateful to the few who have donated in our names. So to the few of you who have, your kindness and help is a blessing! Thank you!

And if any of you kind souls do happen to be interested in donating: CLICK MEEEEE! :D 

With that, I think I've reached that point of I've said all I'd like to say for now! Thanks for reading and following along. I will do a smallish update once I have my implant surgery date in sight.

Until then, I'm wishing you all the very best always. Lots of love and happiness and good things! God bless and take care.

"Now may the Lord of peace Himself give you peace at all times and in every way. The Lord be with all of you."  2 Thessalonians 3:16

Never ask why

Hey all! So I'm a little late, but Happy 2013!! Let's all make it a good one. Mine surely has to be an improvement over 2012. ;)

It's been a bit over a month since my last post and I figured it was time I give an update. Lord knows I'd been meaning to, but time has a way of getting away from me.

I began radiation on December 27th. All went well for the first week or two. Granted there happened to be technical difficulties on the radiation machines' behalf that meant I was unable to be treated a couple of days. On the 8th treatment is when I began having some issues. 

DISCLAIMER: This is pretty disgusting so please do not read the next 3-ish paragraphs if you get squeamish!

Ahem, that being said...

Radiotherapy is relatively painless. It has a list of side effects that may happen to your skin and I have been lucky to miss out on most of them so far. What it did cause me was some intense skin dryness on the treated area (my right breast specifically). Now, seeing as I am without a nipple on that side, and in its stead have a Sally-like scar where they had dispatched the dead skin where the nipple once lived, the skin became very taut along there. 

As I have learned over the past year, my body has this weird way of spitting out "dissolvable" stitches. Particularly little knots. Nasty, I know. I found this out from my port-a-cath placement procedure. Then it happened with the spots where I had been stitched up after my drains leftover from my bilateral mastectomy were removed. Lastly, it happened with my freshest stitch-up. After starting rads, my skin shrinkage came on quickly. This allowed for the leftover stitches to poke their way through my skin easier.

When they came out, I was left with small openings where they had been. I just figured time would heal it over and continued my treatment. Then one day after getting out of the shower, one of these openings began leaking fluid. -_- BLEH, right? So so so gross. I told my doc about it asap, she wanted to keep watch of it but didn't think it too serious. 

It stopped after a day. I was good for a week, and then it started up again. This time it wasn't stopping. So this meant an immediate halt to my rads. Had to set up to see my plastic surgeon to have him look it over. He then thought to remove some more saline from my right expander. He suspected it was sera serum coming from inflammation to the breast tissue from radiation. They took a culture and sent it to be checked just in case however.

Not long after the saline was taken out, the leaking quit again. Saw Dr. Young again, had her give the okay for me to resume treatment. Then I had to get the CT done again as guess what? The saline removal from my expander meant I'd had change in my breast. Yeah, so I had to have my treatment plan revamped. 

Arghhh! 

Haha, well I'm sure there was a good reason for this all to have happened the way it did. Good news is I'm back on track. Yesterday and today I got to go get treated as normal. 

I thought I was tired after settling back into working, and it's nothing compared to how I feel now. I almost cannot function in the early evening unless I take an hour nap at some point during the day. I guess my routine is reason enough to feel tired. Monday through Friday, I usually open at work. I get up at 3AM and start work at 4AM. Work between 4-6 hours, and then either go home and hang for a bit before going to radiation or go straight to it from work. 

So I spend probably something like an hour and a half to two hours just on driving to and from the places I need to be. That may not seem a lot, especially to those of you who commute daily, but for someone 3 months out from intense surgery, chemotherapy and currently undergoing radiotherapy, it's exhausting. Lol! As I spoke of before, my body still doesn't behave the way it did prior to all this. 

Small price to pay for an extension on my lifetime. :)

I've been trying to research ways to conquer the fatigue. Regular exercise is a common solution. So Jason and I are beginning kickboxing lessons together starting, hopefully, next week! I'm really excited about it. I'm praying it will help.

That's all my cancer related news for now! Other than going to appointments and treatment I've just been working. I can't tell you how pleasant it is to return to living world. I enjoy having minor dramas and concerns to deal with again. Haha.

And speaking of work, tomorrow will make it a year that I started at Starbucks. So crazy. 

All I will say is that God works in mysterious ways. 

Next Monday is the hubby's birthday, and this weekend we're going to celebrate. Going to see Ben Folds Five play in Los Angeles, spend the night out there and then hopefully do something neato in the area before we head home. I'm definitely looking forward to it! Birthdays are so special and I think I might even value them of the ones I love more than they do at this point. Lol, I'm grateful to be here to celebrate it with him is all.

Ahh, and of course our adorably precious Princess Chinsuela keeps me entertained with her antics too. That sweet little creature. I love her to pieces. I've taught her to highfive. Mhm, you heard me! 

Proof:

My sincerest thanks again to all who have asked about/prayed for/thought of me lately. I know I did a bit of a disappearing act. Normal-ish life does that to a person! And man oh man am I ever happy that's the reason why I haven't posted as of late!

Anyway, I hope you all have a lovely week and weekend to follow. I also hope you can spend it enjoying time with people (and critters) you love. ^_^

God bless.

 "For we walk by faith, not by sight"  2 Corinthians 5:7